List of HEALTH and DISABILITY-RELATED Mailing List Updated: December 1995 ***************************************************** This is a list of mailing lists that are disability and/or health related. See the codes for how to subscribe. This is a working list. We have tried to ensure that it is accurate. However, mailings lists are frequently change. Some lists are discontinued or acquire new addresses. There are also new lists being created weekly. If you have a problem with any resource on this list, or would like the latest version of the list, please e-mail either of the individuals noted at the end of this document. Please note that the addresses with the .bitnet extension are only available through that address if you are on a bitnet. If you are not on a bitnet, you might try using a bitnet gateway. One that has been recommended is at CUNY. If you have a bitnet name@address, convert it to name%address.bitnet@cunyvm.cuny.edu and it should get through. Where both the Bitnet and Internet address are provided, the Internet address have been listed because it is more universally accepted. We would be happy to list any additional appropriate lists. Please contact either of us with list information. To subscribe to any of these lists, send an e-mail message to the LIST address. Leave the subject line blank, see the protocol listed under Subscription code. For example, if John Doe wanted to subscribe to the ADA-LAW list, he would send and e-mail message to: listserv@vm1.nodak.edu. In the text he would type exactly: subscribe ADA-LAW John Doe Subscription Codes: (a) subscribe (b) subscribe listname (c) subscribe listname yourname (e) subscribe listname your-email-address (f) private/informal just send a request note to the listed address (o) other subscribe directions, see list for more specific information (u) subscribe info unknown - sorry (d) digest available Topics: ________________________________________ ADOPTION -------------------------------------------- ADOPTION Also known as the Triad List, this list is for adoptive parents, birth parents, adoptees, social workers or other interested individuals. (c) listserv@sjuvm.stjohns.edu BRTHPRNT Primary audience is birth parents of adopted children. (c) listserv@win95.dc.lsoft.com CCADOPTION discussion group between parents of cross culturally adopted children and adult cross cultural adoptees about issues and topics salient to the cross cultural adoption experience. (o) send mail to Tahnee C. Hartman, hctahnee@umich.edu, (adult ccadoptee) or Kathleen M. Nelson, kjam@umich.edu, (parent of ccadoptees) with a request to join. You must either be a parent of ccadoptees or a ccadoptee to join the list. DANS Deaf Adoption News Service on waiting foreign deaf, hard-of-hearing, or "possibly hearing impaired children" in need of adoptive families. (o) send message to sberke@netcom.com with your full name and indicate whether you are deaf, hard-of-hearing or a hearing sign languge user ________________________________________________ ADVOCACY ----------------------------------------------------- AIMEMBERS-L discussions on human rights for members of Amnesty International (f) membership in AI encouraged (write to amnesty-info@igc.apc.org for information on how to join AI) Subscribe message subscribe aimembers-l majordomo@lists.best.com ADVOC-L Limited to self-advocates listserv@listserv.syr.edu (c) ADVOCACY listserv@sjuvm.stjohns.edu (c) DADVOCAT Fathers of Children with Disabilities (c) listserv@ukcc.uky.edu DERECHOS-L Spanish language mailing list for the discussion of human rights issues. (e) majordomo@lists.best.com HEALNORM The human rights of people with psychiatric labels (b) majordomo@efn.org JUSTICE FOR ALL Distributes information about congressional activities of interest to families, people with disabilities and advocates. (o) To be added to the mailing list, send a message to: becky@names.org _____________________________________________ ADA - THE AMERICANS WITH DISABILITIES ACT ------------------------------------------------- ADA-LAW ADA, related legislation listserv@vm1.nodak.edu (c) AWD Legislation affecting people w/ disabilities: ADA, IDEA, 504... (e) majordomo@counterpoint.com ____________________________________________ AIDS - ACQUIRED IMMUNE DEFICIENCY ------------------------------------------------------ ACT-UP Aids activism (ACT-UP) (u) act-up-request@world.std.com AIDS Mail gateway for the Usenet newsgroup sci.med.aids (b) Majordomo@wubios.wustl.edu AIDS-STAT for the distribution of AIDS statistics from various agencies. (o) aids-stat-request@wubios.wustl.edu __________________________________________ ALLERGY -------------------------------------------------------- ALLERGY Allergies, bronchitis, etc... listserv@tamvm1.tamu.edu (c)(d) YEAST-L: Yeast-related Medical Problems (c) listserv@psuhmc.hmc.psu.edu MCS-IMMUNE The MCS-immune list is a mailing list for people with MCS (Multiple Chemical Sensitivities) (c) majordomo@orbital.net _________________________________________ ALTERNATIVE HEALTH CARE ------------------------------------------- SPIRAMED All aspects of spirituality and medicine (c) listserv@sjuvm.stjohns.edu HOLISTIC Holistic health discussion group listserv@siucvmb.bitnet (u) ____________________________________________ ALZHEIMERS -------------------------------------------------- ALZHEIMER Discussions about alzheimers majordomo@wubios.wustl.edu (c) (d) _____________________________________________ AMPUTATION ----------------------------------------------- AMPUTEE SJU List for Amputees listserv@sjuvm.stjohns.edu (c) I-CAN Information - Children's Amputee Network (b) maiser@hoffman.mgen.pitt.edu ______________________________________________ ASSISTIVE TECHNOLOGY -------------------------------------------------- ADAPT-L Forum for librarians and library staff members to discuss adaptive technology issues affecting patrons and employees with disabilities. (c) listserv@american.edu AXSLIB Disability Access to Libraries (c) listserv@sjuvm.stjohns.edu CRT-FOCUS Assistive Technology for people(and children) with disabilities (u) crt-focus@list.gatech.edu EASI Equal Access to Software and Information (c) listserv@sjuvm.stjohns.edu IBM-SRD discussion list for all aspects of the IBM screen reader project. (c) listserv@vm1.nodak.edu ITD-JNL Information and Technology for the Disabled Complete Journal (c) listserv@sjuvm.stjohns.edu ITD-TOC Information and Technology for the Disabled Table of Contents (c) listserv@sjuvm.stjohns.edu LIBACC A list to help librarians provide people with disabilities access to all library resources and services. *to join, send a note to the list owner, Dick Banks at rbanks@uwstout.edu UB-ADAPT UB adaptive computing discussion list (c) listserv@ubvm.cc.buffalo.edu VAT Vendors of Adaptive Technology (c) listserv@kramden.phaedrv.on.ca ___________________________________________________ ATTENTION DEFICIT DISORDER ---------------------------------------------------------- ADD-KIDS Parents of kids with ADD (no chatter) (a) add-kids-info-request@dragon.com ADD-PARENTS Children with ADD/ADHD majordomo@lists.mv.net (b) ADDULT Adults with Attention Deficit Disorder listserv@sjuvm.stjohns.edu (c) _________________________________________________ AUTISM ----------------------------------------------------------- ANI-L Autism International Network - For self advocates (b) listserv@utkvm1.utk.edu AUTISM SJU Autism and Developmental Disabilities List (c) listserv@sjuvm.stjohns.edu ME-List Private mailing list forum for discussion "Lovaas" therapy for autism and related disorders. To subscribe to this list, send a short note to Ruth Allen giving your specific reason for interest in this topic at: (f) rallen@indyva.iupui.edu PAN-L Parents and Autistics Network List is a private e-mail list of (f) autistic people and parents of autistic people cas@scorch.hna.com.au (Carolyn Baird) ________________________________________________ BEHAVIOR -------------------------------------------------------- BEHAVIOR Behavioral/Emotional Disorders in Children (c) listserv@asuvm.inre.asu.edu OCD-L Issues concerning obsessive compulsive disorder (c) listserv@vm.marist.edu ____________________________________________________ BLINDNESS/ VISION IMPAIRMENTS ------------------------------------------------------------- ACCESS dedicated to closed-captioning, audio description, and other Media Access issues. (b) listmanager@hookup.net BLINDFAM SJU List for Families of the Blind listserv@sjuvm.stjohns.edu (c) BLIND-L Computer use for and by the blind listserv@uafsysb.uark.edu (c) BLINDNWS "Blind News Digest" listserv@vm1.nodak.edu (c) (d) BRAILLE Braille discussions in Czech and English listserv@earn.cvut.cz (c) BRCTR Braille research center forum listserv@ulkyvm.louisville.edu (c) BUDDY-L list for guide dog users. (c) buddy-admin@scs.tamu.edu LOWVIS Low Vision Discussion List listserv@sjuvm.stjohns.edu (c) MIDI-MAG list for blind musicians to discuss adaptive access to (o) computer-based music making technologies. To subscribe send a message to listserv@netcom.com with the following message: subscribe midi-mag NABS-L National Alliance of Blind Students symposium. (c) listserv@vmd.cso.uiuc.edu OANDM the discussion of topics related to Orientation and Mobility. (C) listserv@msu.edu RPLIST SJU Retinitis Pigmentosa and Other (c) Degenerative Retinal Diseases List listserv@sjuvm.stjohns.edu SERVICE-DOGS Anyone interested in training or using guide, hearing or other assistance dogs (b) majordomo@acpub.duke.edu ___________________________________________________ CANCER / TUMORS ------------------------------------------------------- BRAINTMR Brain tumor research & support listserv@mitvma.mit.edu (c) BMT-TALK Bone Marrow Transplant list bmt-talk-request@ai.mit.edu (a) CANCER-L Cancer listserv@wvnvn.wvnet.edu (c) CLAN Cancer liaison & action network listserv@frmopll.cnusc.fr HEM-ONC A list for patients, family, friends, researchers and physicians to discuss clinical and non-clinical issues of hematologic malignancies including leukemia, lymphoma, and multiple myeloma. (c) listserv@sjuvm.stjohns.edu OVARIAN A list for people who want to discuss ovarian cancer and other ovarian disorders. (c) listserv@sjuvm.stjohns.edu ________________________________________________ CEREBRAL PALSY -------------------------------------------------------- C-PALSY St. John's University Cerebral Palsy List (c) listserv@sjuvm.stjohns.edu OUR-KIDS Parents of children with a variety of disabilities including CP (b) (d) majordomo@tbag.osc.edu _________________________________________________ COMMUNICATION DISORDERS ------------------------------------------------------ ACOLUG Augmentative Communication On Line Users Group (c) listserv@vm.temple.edu COMMDIS Communication Disorders comserve@vm.its.rpi.edu (c) The Commdis hotline and other Comserve services are intended for individuals with a scholarly interest in communication studies. CDMAJOR Communication disorder discussions listserv@kentvm.kent.edu (c) FONETIKS One way newsletter for students and researches interested (o) in speech production and speech perception, speech disorders, automatic speech recognition and speech synthesis. *Send a request to: R34334@uqamon the bitnet network GESTURE-L For anyone interested in the study and documentation of gestures, gesture systems, and alternate sign languages. (c) majordomo@coombs.anu.edu.au ________________________________________________ CHRONIC FATIGUE SYNDROME/FIBROMYALGIA ------------------------------------------ CATHAR-M Catharsis - Creative Newsmagazine for Chronic Fatigue Syndrome (c) listserv@sjuvm.stjohns.edu CFIDS-L CFS activist talk listserv@listserv.american.edu (c) CFS-FILE Chronic Fatigue Syndrome files CFIDS/ME (c) listserv@sjuvm.stjohns.edu CFS-L Chronic fatigue syndrome (c) listserv@list.nih.gov CFS-NEWS Chronic fatigue medical news (c) listserv@list.nih.gov CFS-WIRE Chronic Fatigue Syndrome NEWSWIRE CFIDS/ME (c) listserv@sjuvm.stjohns.edu FIBROM-L Fibromyalgia & Fibrositis listserv@vmd.cso.uiuc.edu (c) SCR-L Cognitive rehabilitation (c) LISTSERV%mizzou1.bitnet@ubvms.cc.buffalo.edu ________________________________________________ CRANIAL / FACIAL --------------------------------------------------------- CLEFT-TALK list for families with children born with cleft lip and palate or other craniofacial anomaly. (c) listproc@mother.com MY-FACE A list for people of all ages who are disfigured by birthmarks, burns, facial cancer and palsy, and skin conditions like acne, eczema, and vitiligo. (c) listserv@sjuvm.stjohns.edu WIDE SMILES For adults and families with children with cleft lip or cleft palate. (o) send an e-mail message to editor, Joanne Green at: WideSmiles@aol.com __________________________________________________ CYSTIC FIBROSIS --------------------------------------------------------- CYSTIC-L Cystic Fibrosis listserv@yalevm.cis.yale.edu (c) ____________________________________________________ DEAF/HEARING IMPAIRMENT/SIGN LANGUAGE ------------------------------------------------------------ BEYOND-HEARING Hearing loss (b) majordomo@acpub.duke.edu DEAF Deaf On-line Magazine deaf-request@clark.net (c) DEAFBLND Deaf/Blind listserv@ukcc.uky.edu (c) DEAFKIDS DeafKids List for Deaf Children listserv@sjuvm.stjohns.edu (c) DEAFSPORTS Discussions about deaf in sports (c) listserv@gallux.gallaudet.edu DEAF-L Deaf List listserv@uga.cc.uga.edu (c) DEAF-MAGAZINE Weekly Deaf Magazine listserv@listserv.deaf-magazine.org (c) EDUDEAF Discussions: Issues on deaf education. (c) listserv@ukcc.uky.edu MRDEAF-L Cognitive disabilities w/ deafness majordomo@bga.com (b) SERVICE-DOGS Anyone interested in training or using guide, hearing or other assistance dogs (b) majordomo@acpub.duke.edu SIGN LANGUAGE - has its own section under sign language TFA International news service for people who are deaf, hard of hearing (o) or otherwise affiliated with the deaf community. Most information relates to events and news at Gallaudet. *Send a message to: Rbweinstock@gallua.gallaudet.edu _________________________________________________ DEVELOPMENTAL DISABILITIES -------------------------------------------------------- AGING-DD Aging & Developmental Disabilities listserv@ukcc.uky.edu (c) DDFIND-L Disabilities forum for info. networking (c) listserv@univscvm.csd.scarolina.edu DDHEALTH Health Issues for People with Developmental Disabilities (c) listserver@relay.doit.wisc.edu DDLINE Children's disability list listserv@uicvm.uic.edu (c) MRDEAF-L Cognitive disabilities w/ deafness majordomo@bga.com (b) OUR-KIDS Parents of children w/ disabilities majordomo@tbag.osc.edu (b) (d) Psych-DD For psychologists and allied professionals to share ideas encompassing the area of developmental delays (c) listserv@vm1.nodak.edu _________________________________________________ DIABETES -------------------------------------------------------------- DIABETIC open discussion of diabetic concerns listserv@pccvm (c) listserv%pccvm@ubvms.cc.buffalo.edu DIABETIC Diabetes listserv@lehigh.edu (c) DIABETES Int'l research project on diabetes listserv@irlearn.ucd.ie (c) DIABETIC-MAX A German language (mainly) list for Diabetic Children (e) majordomo@rachael.franken.de You can get an English info-file from http://www.franken.de/users/daneel/C.Renner/index.html DIABETES-NEWS Diabetes Interview is dedicated to providing the best and most up-to-date information on health and diabetes care. Our newletter is a moderated list, which means that individuals cannot post messages directly to the list (c) listserv@netcom.com DIABETES-TALK The discussion group, diabetes-talk, is here for you to discuss issues presented in our diabetes-news newsletter (c) listserv@netcom.com _________________________________________________ DOWN SYNDROME --------------------------------------------------------- DOWN-SYN Down Syndrome (started Fall of 1993) (c) listserv@vm1.nodak.edu UPSNDOWNS Down Syndrome (started 12/95) (o) join upsndowns upsndowns_manager@downsyndrome.com ______________________________________________ EDUCATION ------------------------------------------------------- ACCESS dedicated to closed-captioning, audio description, and other Media Access issues. (b) listmanager@hookup.net ALTLEARN Alternate approaches to learning listserv@sjuvm.stjohns.edu (c) CADRE Coalition Advocating for Disability Reform In Education (c) listserv@sjuvm.stjohns.edu DSSHE-L Students w/ dis in higher education (c) listserv@ubvm.cc.buffalo.edu EDEQUITY Educational Equity Discussion List) is an international theory and practice discussion list on issues of educational equity (b) majordomo@confer.edc.org EDUDEAF Discussions: Issues on deaf education. (c) listserv@ukcc.uky.edu HMEDRSCH Home education list listserv@etsuadmn.etsu.edu (c) INCLUSIVE-EDUCATION inclusive education list mailbase@mailbase.ac.uk (c) NABS-L National Alliance of Blind Students symposium. (c) listserv@vmd.cso.uiuc.edu STARNET Educators, administrators, and service providers who share a common interest in helping youth at-risk. (c) listproc@services.dese.state.mo.us SPEDTALK Topics in special education majordomo@virginia.edu (b) SNEtalk-l General discussion in the field of special education needs. (c) listproc@schoolnet.carleton.ca SNEparentalk-l A list for care providers and parents of students with special education needs. (c) listproc@schoolnet.carleton.ca SNEteachtalk-l A list for educators who are involved in special education. (c) listproc@schoolnet.carleton.ca _______________________________________________ EMPLOYMENT OF PEOPLE WITH DISABILITIES ------------------------------------------- ABLE-JOB Discussion of disabilities and employment (c) listserv@sjuvm.stjohns.edu ABLE-L Ability Journal listserv@asuvm.inre.asu.edu (c) _______________________________________________ EPILEPSY ------------------------------------------- EPILEPSY-LIST Epilepsy & seizure disorders (c) listserv@calvin.dgbt.doc.ca ____________________________________________ FRAGILE X SYNDROME ------------------------------------------------------ FRAGILEX Discussion of all aspects of Fragile X Syndrome (b) Majordomo@counterpoint.com _______________________________________________ GASTRO-INTESTINAL -------------------------------------------- CEL-KIDS Celiac/Coeliac Wheat/Gluten-Free List for Children (c) listserv@sjuvm.stjohns.edu CELIAC SJU Celiac -- Wheat and Gluten Intolerance List (c) listserv@sjuvm.stjohns.edu DIARRHOE information exchange and discussions on all aspects related to diseases, disorders, and chemicals which cause diarrhoea in humans & animals. (c) listserv@searn.sunet.se INGEST Ingestive disorders list (c) listserv%cuvmb@ubvms.cc.buffalo.edu IBDLIST All aspects of Inflammatory Bowel Disease (f) IBDlist-request@menno.com _______________________________________________ GENETIC DISEASE MAILING LISTS INFORMATION ----------------------------------------------- GENETIC-DISEASE list is a means of networking and communication for individuals concerned with the various genetically- transmitted diseases affecting Jewish populations (c) listproc@shamash.nysernet.org NOTE: Anonymous subscriptions are not permitted. Please plan to provide a verifiable personal name. FD-NET Familial Dysautonomia families (c) listserver@relay.doit.wisc.edu _______________________________________________ GENERAL DISABILITY INFORMATION ----------------------------------------------- ADVOC-L Limited to self-advocates (c) listserv@listserv.syr.edu BICOMPAL The Big Computer Pals Discussion List (c) listserv@sjuvm.stjohns.edu CSHCN-L Children with Special health Care Needs (c) (d) listserv@nervm.nerdc.ufl.edu L-HCAP Digest of several on-line resources (c) (d) listserv@vm1.nodak.edu LTCARE-L Research on Disability and Long-term care (c) listserv@list.nih.gov MCAREDIS Managed Care and Disabilities (c) listserv@sjuvm.stjohns.edu _______________________________________________ HEALTH CARE - FINANCING & REFORM --------------------------------------------- HEALTH-CARE-REFORM Forum to discuss health care reform. (b) majordomo@world.std.com HEALTHRE Health care reform discussion list (c) listserv@ukcc.uky.edu FINAN-HC Health care financing matters (c) listserv@wuvmd.wustl.edu LIST.HEALTHPLAN - White House announcements that refer to health-care reform. (c) SFreedkin@igc.apc.org MEDFINANCE Financial issues relevant to health care in Canada. (f) Send a note to the listmanager listmanager@hookup.net _______________________________________________ HEALTH CARE PROFESSIONALS / RESEARCHERS - LISTS FOR, ----------------------------------------- ANES-HIST History of anesthesia, pain management, critical care medicine and any remotely-related topics. (c) listproc@gasnet.med.yale.edu ANXIETY-DEPRESSION-YOUTH an exchange of ideas, opinions, and information amongst those involved in research and clinical practice in the areas of child and adolescent anxiety and depression. The group is an interdisciplinary one involving a variety of mental health professions. (c) listserv@netcom.com BALINT physicians and psychoanalysts engaged in dealing with the multifarious problems engendered in the course of the medical treatment (c) listserv@sjuvm.stjohns.edu BIOMCH-L Biomechanics discussion list (f) sub biomch-l@nic.surfnet.nl listserv@nic.surfnet.nl CADUCEUS-L Moderated discussion list that provides a forum for exchanging information on any aspect of the history of the health sciences (b) Mailserv@beach.utmb.edu. DYSPHAGIA discussion of swallowing and its disorders from both a clinical and research view. (b) majordomo@cyberport.com GENTECH To support discussions about genetic engineering. (f) subscribe firstname lastname gentech-request@doo.donut.ruhr.com HEALTH-PRO A list from the Practice Guidelines Users Group to discuss and develop Foresighted Practice Guidelines. (b) listserv@netcom.com HOMEHLTH management of home health agencies, hospices, home infusion therapy providers and suppliers of durable medical equipment, prosthetics, orthotics and supplies. (c) listserv@usa.net MCHDNN On-line notification system of the Epidemiology and Data Analysis Committee (o) Maternal and Child Health Send message to: MCHDNN_InBox@quickmail.ucsf.edu In the subject line type: NEW SUBSCRIPTION, in the body of the text type: SUBSCRIBE MCHDNN, your e-mail address, your first name, your last name, your company name and your position, your company address, your work phone and fax numbers. METAB-L A list for physicians, biochemists, and scientists (only) working in the field of Inborn Errors of Metabolism (e) majordomo@rachael.franken.de NRCHH friendly and open discussion among those engaged in the daily operations of health care information systems. (c) listserv@usa.net ALSO SEE SECTION FOR NURSES OANDP-L The science of Orthotics/Prosthetics (c) listserv@nervm.nerdc.ufl.edu OT-ONLINE online newsletter restricted to Occupational Therapists (c) majordomo@dartmouth.edu OTOHNS Otolaryngology Discussions ronaldk@bcm.tmc.edu (f) A subscription to OTOHNS can be obtained by sending a message including your real name, your e-mail address, and a short note describing your interest in the field SURGINET General Surgery Discussion List (c) listserv@vm.utcc.utoronto.ca VASCUNET Vascular Surgeons Discussion Group (c) listserv@vm.utcc.utoronto.ca _________________________________________________ HEALTH CONDITIONS - MISCELLANEOUS ----------------------------------------- ALZHEIMER Discussions about Alzheimers majordomo@wubios.wustl.edu (c) BACKS-L Research on low back pain, disability and rehabilitation (c) (d) listproc@moose.uvm.edu CELIAC SJU Celiac -- Wheat and Gluten Intolerance List (c) listserv@sjuvm.stjohns.edu CTF Clinical Trial Finder, a moderated list for those seeking clinical trials for any problem, and for medical providers, researches to announce clinical trials. (c) listserv@garcia.com CYSTIC-L Cystic Fibrosis (c) listserv@yalevm.cis.yale.edu FASLINK Fetal Alcohol Syndrome and Fetal Alcohol Effets (o) enter JOIN FASLINK in body of message list@ccsa.ca FD-NET Familial Dysautonomia families (c) listserver@relay.doit.wisc.edu FIBROM-L Fibromyalgia & Fibrositis (c) listserv@vmd.cso.uiuc.edu HEPV-L for people who have been diagnosed with chronic hepatitis (c) listserv@sjuvm.stjohns.edu HYCEPH-L for people with hydrocephalus, their friends and family members, health care professionals and anyone else with an interest in the condition. (c) listserv@vm.utcc.utoronto.ca IMMUNE Immune Disorders (b) immune-request@weber.ucsd.edu LYMENET-L appears 2x's per month, focuses on research, treatment and politics about Lyme disease (c) listserv@legigh.edu MCS-IMMUNE The MCS-immune list is a mailing list for people with MCS (Multiple Chemical Sensitivities) (c) majordomo@orbital.net MD-LIST Muscular dystrophy (u) md-list-request@data.bisix.com PRADER-WILLI SYNDROME ONLINE NEWS DIGEST (f) (d) Send message requesting subscription to : pwsforum@aol.com PROSTATE Prostate problems discussion list. (c) listserv@sjuvm.stjohns.edu LUPUS-L general discussion group about lupus (c) listproc@piper.hamline.edu LUPUS-R discussion group about lupus research (c) listproc@piper.hamline.edu PAIN-L All Aspects of PAIN (c) listserv@sjuvm.stjohns.edu PARKINSN Parkinson's Disease Infoamtion Exchange Network (c) listserv@vm.utcc.utoronto.ca SOREHAND Carpal Tunnel & Tendinitis (c) listserv@itssrv1.ucsf.edu SURGINET General Surgery Discussion List (c) listserv@vm.utcc.utoronto.ca VITILIGO Vitiligo is a skin disease characterized by milk-white patches (c) listserv@sjuvm.stjohns.edu WITSENDO Endometriosis (c) listserv@dartmouth.edu ___________________________________________________ INDEPENDENT LIVING -------------------------------------------------- ACCESS dedicated to closed-captioning, audio description, and other Media Access issues. (b) listmanager@hookup.net BUDDY-L list for guide dog users. (c) buddy-admin@scs.tamu.edu SERVICE-DOGS Anyone interested in training or using guide, hearing or other assistance dogs (b) majordomo@acpub.duke.edu ________________________________________________ LEARNING DISABILITIES ---------------------------------------------- ld-list Learning disabilities majordomo@curry.edu (b) Please note lower case for name ld-list ______________________________________________ MENTAL HEALTH ------------------------------------- ANXIETY-DEPRESSION-YOUTH an exchange of ideas, opinions, and information amongst those involved in research and clinical practice in the areas of child and adolescent anxiety and depression. The group is an interdisciplinary one involving a variety of mental health professions. (c) listserv@netcom.com BEHAVIOR Behavioral/Emotional Disorders in Children (c) listserv@asuvm.inre.asu.edu CliniPsy A list foe the world-wide community of clinical psychologists to share ideas and data in the area of clinical psychology. (c) listserv@vm1.nodak.edu DENDRITE A low-volume, ONE-WAY mailing list with human rights alerts about people with psychiatric labels (b) majordomo@efn.org EAT-DIS exchange of ideas, opinions, and information on clinical and research aspects of anorexia and bulimia nervosa, obesity, and other atypical pattens of eating behavior. (c) listserv@sjuvm.stjohns.edu HEALING Healing: Survivors of Intimate Abuse (c) listserv@sjuvm.stjohns.edu HEALNORM The human rights of people with psychiatric labels (b) majordomo@efn.org IPN is the mailing list of the InterPsych Newsletter (b) listserv@fra.psych.nemc.org PSYCH-DD basic psychological and behavior analytic issues in DD (c) listserv@vm1.nodak.edu PENDULUM Bi-polar depression (b) majordomo@ucar.edu Psychiatry & Psychology mailbase@mailbase.ac.uk (o) SUB PSYCHIATRY RIA-L Recovery In Action - ALL forms of compulsive substance abuse (b) listserv@netcom.com SCHIZ-L Schizophrenia Research List (o) To request a subscription, contact Steven Daviss at: sdaviss@umabnet.ab.umd.edu SCHIZOPH Schizophrenia Discussion Group (c) listserv@vm.utcc.utoronto.ca SELF-HELP self help list to raise the self-esteem of subscribers (f) subscribe self-esteem-self-help listserv@netcom.com SOCRATES International list for persons interested in the theoretical and philosophical foundation of psychology. (c) listserv@pmc.psych.nwu.edu THISISCRAZY-l Electronic action and information letter for people who experience mood swings, fright, voices and vision. (b) majordomo@netcom.com Walkers (unipolar depression) (b) majordomo@world.std.com OCD-L Issues concerning obsessive compulsive disorder (c) listserv@vm.marist.edu ________________________________________________ NEUROLOGICAL ------------------------------------------------- STROKE-L Strokes (c) listserv@ukcc.uky.edu TBI-SPRT St. John's University Traumatic Brain Injury Support Group List (c) listserv@sjuvm.stjohns.edu ______________________________________________ NURSES, LISTS FOR -------------------------------------------------------- CNS-L Clinical Nurse Specialist Interest Group (c) listserv@vm.utcc.utoronto.ca NURSENET A global forum for discussing nursing issues (c) listserv@vm.utcc.utoronto.ca NURSERES Discussion list for nurse researchers (c) listserv@kentvm.kent.edu. NURSELRC for nursing Learning Resource Centre faculty and staff to network about psychomotor skill acquisition, care and maintenance of equipment, instructional strategies, computer and audio-visual resources and funding sources. (b) majordomo@Douglas.bc.ca PARSE-L Parse's Nursing Theory (c) listserv@vm.utcc.utoronto.ca PNATALRN On-line resource for networking with perinatal nursing colleagues, in the areas of perinatal nursing practice, education, and research. (c) listserv@ubvm.cc.buffalo.edu RN-JOBS information concerning professional nursing employment (b) majordomo@npl.com RN-TRAVEL Discussion of general issues relating to being a traveling RN. (c) listproc@listproc.nonprofit.net ________________________________________________ PARENTING / FAMILY LIFE ------------------------------------------------------- OUR-KIDS Parents of children w/ disabilities (b) (d) majordomo@tbag.osc.edu TEAMWORK discussions of all aspects of family life that are effected by the disability of one or more family member. (c) listserv@sjuvm.stjohns.edu DADVOCAT Fathers of Children with Disabilities (c) listserv@ukcc.uky.edu DIS-SPRT St. John's University Disability Support of Families List (c) listserv@sjuvm.stjohns.edu LOSTANGELS families to discuss the sensitive issues raised when one (or more) of a multiple set dies (at anytime after conception). (b) majordomo@tripcom.com ________________________________________________ PHYSICAL DISABILITIES ------------------------------------------------------- BIFIDA-L Spina Bifida/Hydrocephalus (c) listserv@mercury.dsu.edu C-PALSY St. John's University Cerebral Palsy List (c) listserv@sjuvm.stjohns.edu HYCEPH-L for people with hydrocephalus, their friends and family members, health care professionals and anyone else with an interest in the condition. (c) listserv@vm.utcc.utoronto.ca MD-LIST Muscular dystrophy (a) md-list-request@data.basix.com MOBILITY SJU Mobility Disabilities List (c) listserv@sjuvm.stjohns.edu RSI-EAST St. John's University Repetitive Strain Injury List (c) listserv@sjuvm.stjohns.edu POLIO SJU Polio and Post Polio Syndrome List (c) listserv@sjuvm.stjohns.edu _________________________________________________ RARE DISORDERS ---------------------------------------------- ANGELMAN A list for parents of children who have Angelman Syndrome. (b) (d) majordomo@tbag.osc.edu CSHCN-L Children with Special health Care Needs (c) (d) listserv@nervm.nerdc.ufl.edu PRADER-WILLI SYNDROME ONLINE NEWS DIGEST (f) (d) Send message requesting subscription to: pwsforum@aol.com RARE-DIS St. John's Uni. Rare Diseases List (c) listserv@sjuvm.stjohns.edu RARE DISEASES message to listproc@list.ab.umd.edu (o) Subscribe RARE DISEASES and your name in the body. getting in is not automatic...someone reviews the request. RETTNET Rett Syndrome List (b) majordomo@paltech.com _____________________________________________ REHABILITATION --------------------------------------- ICACBR-L Community rehab program for persons with disabilities (c) listserv@qucdn.queensu.ca REHAB-RU Physical medicine & rehabilitation, especially in rural areas (c) listserv@ukcc.uky.edu SCR-L Cognitive rehabilitation (c) LISTSERV%mizzou1.bitnet@ubvms.cc.buffalo.edu _____________________________________________________ RESEARCH -------------------------------------------------- DISABILITY RESEARCH LIST mailbase@mailbase.ac.uk (o) send a message saying exactly: join disability-research DISRES-L Research & Disability majordomo@acs.ryerson.ca (f) body of message should say _____________________________________________________ SIGN LANGUAGE ------------------------------------------------------ ADHOCPAC Members of the Sign Language Interpreter adhoc PAC (c) listserv@admin.humberc.on.ca ASL American Sign Language listserv@mdf.fidonet.org (c) ASLING-L American Sign Language listserv%yalevm.bitnet@ubvms.cc.buffalo.edu (c) GESTURE-L Discussions: gestures, gesture systems, etc. (c listserv@coombs.anu.edu.au SLLING-L Sign language linguistics (technical) listserv@yalevm.cis.yale.edu (c) TERPS-L Sign language interpreters, interpreting issues.. For Interpreters whose Working Languages include a Signed Language (c) listserv@admin.humberc.on.ca _____________________________________________________ SPINA BIFIDA ------------------------------------------------------ BIFIDA-L Spina Bifida/Hydrocephalus (c) listserv@mercury.dsu.edu _____________________________________________________ SUBSTANCE ABUSE/RECOVERY ------------------------------------------------------ ADDICT-L mature discussion of the many types of addictions experienced (c) listserv@kentvm.kent.edu ALCOHOL An open list to discuss the abuse of alcohol. (c) listserv@lmuacad.bitnet DRUGABUS issues related to community drug abuse education and the epidemiology and study of drug abuse. (c) drugabus@umab.umd.edu RIA-L Recovery In Action - ALL forms of compulsive substance abuse (b) listserv@netcom.com SMARTREC List for a new non-twelve step abstinence-oriented mutual help (c) listserv@sjuvm.stjohns.edu ________________________________________________________ TRANSPLANTS --------------------------------------------- BMT-TALK Bone Marrow Transplant list (a) bmt-talk-request@ai.mit.edu TRNSPLNT Transplant list (c) listserv@wuvmd.bitnet _________________________________________________________ TRAVEL ---------------------------------------------------- TRAVABLE Information on travel for people w/ disabilities (c) listserv@sjuvm.stjohns.edu _________________________________________________________ MISCELLANEOUS ---------------------------------------------------- BICOMPAL The Big Computer Pals Discussion List (c) listserv@sjuvm.stjohns.edu BOWLBY A moderated discussion list meant for Early Development professionals interested in Attachment theory (c) listserv@sjuvm.stjohns.edu CHILDNOW - Children Now, a nonpartisan policy and advocacy organization for children, particular attention on children who are poor or at-risk. (b) majordomo@dnai.com CSHCN-L Children with Special health Care Needs (c) (d) listserv@nervm.nerdc.ufl.edu HEM-ONC Hematologic Malignancies Discussion (c) listserv@sjuvm.stjohns.edu HEPV-L SJU Hepatitis Support Group List HEPV-L (c) listserv@sjuvm.stjohns.edu LOSTANGELS families to discuss the sensitive issues raised when one (or more) of a multiple set dies (at anytime after conception). (b) majordomo@tripcom.com OANDP-L The science of Orthotics/Prosthetics (c) listserv@nervm.nerdc.ufl.edu PEDNET mailing list for Pedestrian Activists, covers issues of interest to walkers, pedestrians with disabilities and urban/transportation planners. (b) pednet-request@europa.com RSI Repetitive Strain Injury one-way news list. (b) majordomo@world.std.com STUT-HLP For people who stutter and their families. (c) listserv@bgu.edu TRIPLETS triplets , discussions of all multiples are welcome. However it is expectated that discussions will lean towards triplets and more (quadruplets, quintuplets and sextuplets (b) majordomo@tripcom.com #################################################### For changes, deletions, updates, please contact Linda at: rowley@waisman.wisc.edu or Denise Ullman at denise2@avenza.com Thanks! Permission to duplicate or distribute this document is granted with the provision that the document remains intact or if used in sections, that the original document source be referenced. ####################################################